by Fatma Niang | October 26, 2022

Accessing Health Data Records

Patient Rights Grow Teeth In April 2021, the ONC, on behalf of HHS, announced more details on the Information Blocking Rule, a component of the 21st Century Cures Act. This announcement stated that covered entities — healthcare providers, health information technology (HIT) companies, and health information exchanges (HIEs) — would

by Elizabeth Kneeland | September 22, 2022

Data Privacy Discussions

How the Dialogue is Disconnected From Reality Within the increasingly hot topic of health data privacy and security, we can find news and content that ranges from technological innovations (mostly security) to philosophical debate (mostly privacy). On occasion, we encounter a FOMO-triggering estimate of just how much our health data

by John Moore III | March 09, 2022

Show me the Money! Expected Health IT Investment Activity for 2022

Virtual care and consumer-centric hype has dwindled. What's next? The last two years have seen an explosion of interest in new models of virtual care in response to the COVID19 public health emergency. The need to continue providing care while reducing the volume of patients actively visiting brick and mortar

by John Moore | November 29, 2021

The High-Growth Patient Data Market

Looking Ahead: RWD/RWE Opportunities Loom Large Introduction Recent actions by the FDA and the global response to COVID have accelerated interest in real-world data (RWD) and real-world evidence (RWE). Often for use in clinical trial design and execution via distributed clinical trials, this de-identified patient data is quickly becoming an

by Jody Ranck | September 27, 2021

HIPAA, Trust, and the Impact of Data Poverty

Examining recent trends in SDoH, Privacy, and AI Key Takeaways Proposed changes to HIPAA (ONC PDF) that would make sharing data with social services organizations easier are raising privacy concerns. As initiatives such as the Gravity Project continue to build standards for SDoH, the privacy concerns of advocates will likely

by John Moore | June 09, 2021

Patient Engagement Begins with Respect

Health systems nationwide are setting themselves up for a patient privacy revolt. It doesn’t have to be this way; far from it. But their blundering, patronizing, holier-than-thou attitude regarding secondary uses of patient data is frankly infuriating. Now, don’t get me wrong, I am a very strong advocate of using

by John Moore | February 17, 2021

Health Data for Sale – Get Yours Here!

There appears to be a new Gold Rush in healthcare IT to leverage (sell) patient data to Life Science companies: Cerner is coming to market with its Learning Health Network (LHN);Fourteen health systems are coming together to launch Truveta;Allscripts has been at it for a few years with Veradigm;Health Catalyst

by John Moore | January 27, 2015

A Sneak Peek at Austria’s ELGA

Today I had the pleasure of having lunch with an informatics professor from the University of Wien and got an inside look into health IT in Austria. The highlight of our conversation was a discussion regarding ELGA - Austria's national health information network. ELGA Synopsis Timeline: ELGA is an Austrian government funded
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